tag:blogger.com,1999:blog-7727976262007745478.post706226235389073194..comments2024-03-18T10:26:50.958-07:00Comments on My Rose Among Thorns: Falling on the wrong side...MyRoseAmongThornshttp://www.blogger.com/profile/09242358450734138295noreply@blogger.comBlogger1125tag:blogger.com,1999:blog-7727976262007745478.post-52448336861084065722014-05-16T20:06:04.128-07:002014-05-16T20:06:04.128-07:00My son died at age 46 two years ago, he had been d...My son died at age 46 two years ago, he had been diagnosed with Menkes and then the diagnoses was withdrawn because he didn't die - his autopsy shows he very definitely had Menkes disease and now his brother who is 36 is also going down hill rapidly. They say Menkes children can't live that long - that patently isn't true and I have a Specialist autopsy done by the Coroners Court of NSW Australia to prove it. My son Kimberley couldn't speak and had all the above symptoms, my son Nicholas can walk and talk and read but is showing marked deterioration rapidly in progress as his body and brain breaks down - so much more research to be done and data needed.shewhoknowshttps://www.blogger.com/profile/16065669236539528813noreply@blogger.com